The Plan Is Set

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I have a plan. It’s a start anyway. I had an MRI and have met with two surgeons. I liked them both, but decided to go with the one that dropped the f-bombs because I like a person who is straight-forward. She is highly recommended by several friends who have used her and I just felt very comfortable with her.

So I’m letting her take out part of my boob. The bad news…well I guess the whole thing isn’t great news…but the first surgeon was putting a radioactive seed int he day before and I felt like — Okay, I have a theme song, Radioactive by the Firm. That will get me through. But now they are sticking a wire into the area the day of the surgery instead. You try coming up with a song with the word Wire in the title that doesn’t suck.

So I asked one of my dearest friends to help me with this dilemma and she thought for a moment and said, “I don’t know, maybe Sledgehammer??” Then she profusely apologized and said she was sleep deprived, but I couldn’t stop laughing and now my surgery theme song is Sledgehammer.

I feel like everyone should have a theme song for life events. At the moment I’m not scared. I’m done with the testing and the waiting for the moment. Though the biopsy came back benign, I’m prepared for all case scenarios. The surgeon does not like the way it looks, but it could be nothing. It could be atypical. It could be stage 0. All of those things require no significant treatment. It could also be stage 1 or beyond cancer and I will cross that bridge when I get to it.

Right now, the focus is on making my kids feel secure that I’m going to be fine. My son has a fear that I’m going to die because he’s 14 because my mother died when I was 14. So telling him I’m having surgery was not easy. I’ve spent a lot of time assuring them that I know it’s all going to be fine. I pray I’m doing a good job of that. I will deal with whatever is coming my way, but the less they have to worry about, the better.

So surgery is the 13th. Theme song is Sledgehammer (thanks Colleen). And I will probably not panic until the 12th. You can stay tuned for that blog soon. Right now, I’m happy to have a plan and a doctor I really like.

 

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More About Boobs

 

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Sounds like I’m writing porn tonight, doesn’t it? Well, I’m not. I’m still dealing with “different” looking tissue in one of my breasts. I had the stereotactic biopsy that I talked about in my last blog. To anyone out there that needs to have one, I was very surprised that I really felt hardly anything. I was very nervous and it was not at all like the article I had read (sometimes the Internet is not your friend).

I stood up during it, much like a regular mammogram and once they found the spot on 3D, they were able to do the biopsy. I was petrified of the needle to numb the area because they always say “you’ll just feel a pinch” and it hurts like hell. It seriously was only a tiny pinch. Do not be afraid to have this test. I spent all night worrying and it was not bad at all.

The following Tuesday I kept getting emails that there were updates to my health record. It took me a while to get up the courage to look, but when I finally did I read that there was no atypicality and it was benign. A huge sigh a relief.

A sigh of relief that was short lived when I received a phone call from the radiologist the next morning who said they were referring me to a surgeon because while what they tested was benign, no reason was given for why the tissue was different. She said I could have an MRI or see a surgeon, but she thought it would be a good idea to get the surgeon’s recommendation first.

I saw the surgeon this past Wednesday and I’m not sure how I feel. I will have an MRI next Wednesday. She said it would give them more information and she could see blood flow to the area. Basically, when they see areas of distortion (that’s what we’re calling it now, btw) they appear different in different angled mammogram photos. Mine did not really change. They appeared in every photo, though they looked a little different in some.

It’s possible that there is something there and they didn’t take a large enough sample, but she assured me that looking at it, she felt if it was a cancer it was a stage 0 at this point because of the way it’s appearing. So the plan is I’ll have an MRI on Wednesday and speak to her on Friday (hopefully) regarding the results. From there we will make the decision on surgery, that I tentatively scheduled for September 8th because I think I’m going to just want it out.

My husband left the appointment feeling like I didn’t need it out and maybe she was too eager for surgery. I felt the opposite. I felt like I wanted the surgery and she was willing to do it, but preferred to have the MRI and more information first. I do also have a second opinion scheduled for September 1st, so my ducks are in a row.

I hate waiting, though. Waiting for appointments. Waiting for results. Just waiting. Tomorrow I’ll find something more exciting to write about to keep my thoughts on other things.

 

Oh btw, that’s not my boob in the mammogram photo but it amazed me how much the photo looked like the “distortion” they pointed out. It’s the little white star shaped thing an inch or so in from the left.

Tomorrow Will Suck

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I’m trying to be positive about the breast biopsy I need to have tomorrow. I really am. For the most part I’ve stayed off the Internet, other than to diagnose myself with Stage 0 pre-cancer, which for me, is very positive. I’m usually jumping to death very quickly.

But at the moment it’s the procedure itself that’s scaring the crap out of me. It’s called a stereotactic biopsy where they can do a mammogram guided biopsy. It sounds dreadful. Picture a padded table where you ┬álay face down with your boob in a hole. Then the boob is squeezed and the table is lifted. Honestly it all sounds like something from 50 Shades of Grey.

Then someone else told me that while they do numb the area, when they take the tissue, it sounds like a loud gun and scares you. Awesome!

The office called this morning and the place I was going to now cannot do the procedure. The doctor that looked at my mammogram felt like I need this special machine because the suspicious area is so small. That’s a good thing. Small is good. They changed the appointment to a different nearby hospital that apparently have this new piece of equipment.

I need to get through tomorrow and then that’s step one. I spoke to a friend today who had her first biopsy come back normal and a second one come back stage 0. She had a lumpectomy and now they just watch her closely. They did want her to go on a drug called tamoxifen. That scares me because it affects your hormones.

Every drug I’ve ever tried that impacts hormones has been hell, including the pill. I’m not on a very low dose pill, but I have horrific migraines on my week off the pill with the hormone drop. Nothing about adding a new medicine into my already full group of RA meds sounds like fun.

The good news about the appointment change is that it is now at 8:30AM vs 1pm. I have no time to stress about it before we leave. I’m not a morning person so it’s basically wake up, shower, and go.

I’m taking for positive thoughts for tomorrow. Being afraid of the unknown sucks.