Tomorrow Will Suck

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I’m trying to be positive about the breast biopsy I need to have tomorrow. I really am. For the most part I’ve stayed off the Internet, other than to diagnose myself with Stage 0 pre-cancer, which for me, is very positive. I’m usually jumping to death very quickly.

But at the moment it’s the procedure itself that’s scaring the crap out of me. It’s called a stereotactic biopsy where they can do a mammogram guided biopsy. It sounds dreadful. Picture a padded table where you  lay face down with your boob in a hole. Then the boob is squeezed and the table is lifted. Honestly it all sounds like something from 50 Shades of Grey.

Then someone else told me that while they do numb the area, when they take the tissue, it sounds like a loud gun and scares you. Awesome!

The office called this morning and the place I was going to now cannot do the procedure. The doctor that looked at my mammogram felt like I need this special machine because the suspicious area is so small. That’s a good thing. Small is good. They changed the appointment to a different nearby hospital that apparently have this new piece of equipment.

I need to get through tomorrow and then that’s step one. I spoke to a friend today who had her first biopsy come back normal and a second one come back stage 0. She had a lumpectomy and now they just watch her closely. They did want her to go on a drug called tamoxifen. That scares me because it affects your hormones.

Every drug I’ve ever tried that impacts hormones has been hell, including the pill. I’m not on a very low dose pill, but I have horrific migraines on my week off the pill with the hormone drop. Nothing about adding a new medicine into my already full group of RA meds sounds like fun.

The good news about the appointment change is that it is now at 8:30AM vs 1pm. I have no time to stress about it before we leave. I’m not a morning person so it’s basically wake up, shower, and go.

I’m taking for positive thoughts for tomorrow. Being afraid of the unknown sucks.

 

 

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Motherhood: The Perpetual State of PMS

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Well, ok motherhood doesn’t come with bloating, but the emotional highs and lows of being a mom closely resemble my hormonal change during the month. I won’t lie. I’ve always been that person that gets overcome with emotion and cries thinking about a moment. What someone put into something; what it must feel like; etc.

My children mock me because I cry at every one of their events from First Communions to dance recitals, to football banquets. It’s jut a known family fact that if my kids are doing something special, in all likelihood I will cry. I tell them it’s my God-given right as a mother.

Today my oldest daughter, who is 11, had a recital with her vocal coach. She is my shy kid. It’s not easy for her to get up in front of people and she panics. When she panics, I panic for her. I decided in the car the other day that I’m like an empath. I take on other people’s feelings. I’ll get back to that in a moment.

Last year was the first year she sang alone and she did fantastic. She completely broke down during intermission and didn’t think she could do it, which then had me on edge wondering if she was truly going to be able to do it and what we’d do if she ran off or it didn’t go well. I wasn’t going to let her back out because I knew she could do it, and I knew she had the talent. There is no way I’d force her to sing in front of an audience if she wasn’t really ready to do so.

This year she shocked me and chose a song that was really hard. It switched keys in the beginning and switched octaves later on. The good news was she was singing BEFORE intermission this time. She would get it over with and not have to panic for the entire recital.

I dropped her off to warm up and my younger daughter and I went to a few stores to kill some time. I ended up buying my daughter a bracelet that says, “She Believed She Could, So She Did.” It’s a struggle to get my daughter to believe in herself. I wanted to get her something to remind herself that she needs to remember she has the strength inside to do whatever she sets her mind to.

As I stood in the store choosing the bracelet in tears (again), my younger daughter who does not sugar coat said, “Mom, pull yourself together.” (She’s 9.) I was blessed with my youngest daughter for a reason. She challenges me a lot and will likely be the cause of all of my gray hair, but she make me laugh like no one else can, and she says exactly what she thinks which is mighty refreshing.

I popped a half a Xanax when we got to the concert, don’t judge. I did okay through her groups numbers, but the solo killed me and I cried the whole time. Oh I tried to cry quietly, but apparently I made everyone in the rows across from me cry because they were watching me cry. But, my daughter sang beautifully and I was so proud.

Later we went to dinner and once again my kids were asking why I cry so much at events and I think my son was wondering if I cry in particular at his events. I’ll admit I don’t cry during football at this point. I cried the first time his name was announced. I cry at the banquets when the coach is speaking about him, but he doesn’t always catch those moments. My son has been struggling to find his place in the world of sports. He desperately wants to be a great baseball and football player and maybe he will be, but right now he’s just okay. But when it comes to golf, the kid is amazing.

I turned the subject to golf and said, “Well someday when you’re playing at the Master’s, I’ll be at the side of the putting green sobbing while you’re trying to make a very important putt.” I also asked if he’d wear pants with flamingos on them if he was going to be a professional golfer but I was completely shot down on that.

My kids are all kind of finding their own way and it’s a good thing, but they are getting big and it’s just a new phase for us. My son does baseball, football and golf. My oldest daughter was just offered a spot on a dance team, and my youngest has moved away from dance and found a great love of gymnastics. Honestly, I could care less what they pursue as long as they are active and happy.

Back to the empath issue. When I was driving the other day I was thinking about a friend that was going through a difficult situation. Immediately I can put myself into her shoes (as much as possible) and feel that devastation to the point of almost a depression. It can also go the other way. When a friend has a wonderful success, my feeling of happiness and joy for them is very intense, like I can feel the joy they have inside. I decided I’m an empath and that’s not a good thing.

It causes me to have some highs and lows that really have nothing to do with me. Do I sound crazy enough yet? Eh…it’s a blog. If I’m crazy, I’m crazy. At least I’m honest about it.

In other news, I’m down 20lbs. I still look terrible and heavy, but I’m down two pant sizes. I need to be down two more before I’ll really celebrate, but it’s a start. I was gaining 2-3 pounds per week with the medicines I was on for chronic pain, rheumatoid arthritis, anxiety and birth control.

I am off meds for chronic pain, and yes…I’m in pain. No Alleve doesn’t fix it, but moving often helps. I hate when people tell me that, but for me it has helped. My neck has been pretty bad lately and that’s been tough, but other than that I’ve really been okay. As I mentioned in a previous blog the anxiety has been rough.

My new combo of meds is allowing me to lose some weight, though. So for that I’m thrilled. I have a lot of work to do, but I’ll just keep walking/moving/jogging and cutting down on late night eating, which is darn hard when you’re an insomniac. I get hungry at 2AM!

So I’m going to try and sleep before I get up and eat something.

 

 

Explaining Things to Kids…

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I didn’t expect to have a heart to heart with my youngest daughter tonight. Actually, all I really wanted to do was come home and go to bed. Yesterday was my birthday and somewhere around 3pm my headache went from bad to horrific. Since my new insurance decided they weren’t going to cover the only medication that has ever worked for me (Maxalt/rizatriptan) I was forced to try a new medicine.

As any migraine sufferer knows, once you find something that works, the last thing in the world you want to do is try anything else so this came as quite a blow. But, here I was about to try my new medicine. At first I didn’t think it was doing much, but we went out for sandwiches about 40 minutes later before bringing the kids all over God’s creation for their activities and I thought I was doing okay. Then I got in the car and it all went to hell from there.

I got clammy and nauseous and had a plastic bag ready in case I needed to throw up. I laid in the car while my daughter was at gymnastics, just trying not to puke. I managed to keep everything down until we got home and then there was just no stopping it. I felt awful. The pain from my headache seemed to subside, but I was nauseous and vomiting terribly.

Fast forward to today, which I spent in bed because a night of puking does wonders for a person with an autoimmune disease. I was shot and all I could do was rest. We had told the kids that we’d go to dinner, though, since we really didn’t get to celebrate the night before.

Let me start by saying my kids need to work on their table manners. They drove me nuts at dinner. On the way home my daughters driven the car with my and my youngest loves to hear stories from when she was a baby and when all of them were little. She asked who was the first person to hold her and I said that she was my only baby that the doctor immediately handed to me without the nurses taking to weigh and clean off, etc.

In hindsight, this is probably why she was my best breastfeeder because she started from right away. My daughter asked if it was the same for the other two kids and I explained that no, daddy held them and then the nurse took them to weigh and do a screening right there in front of us and then I got to hold them.

She asked why she was different and I guess I thought we’d been through it before and it shouldn’t be anything new. I don’t lie to my kids so I explained that my doctor knew how worried I was about her because her legs and feet were very twisted and we didn’t know if she’d walk or the extent of what was wrong.

I didn’t tell her I was afraid to look at her, but I was. I was petrified to see how bad it was, but I have the most wonderful doctor who had been with me through several miscarriages and three hellish pregnancies. She knew me. She knew I was afraid to see her, so she didn’t even let the nurse touch her. She handed her to me as she was, a little bloody and messy, but so so beautiful. I told my daughter that as soon as I saw her I wouldn’t let anyone else hold her and didn’t want to let her go.

I looked at her and she had tears in her eyes as she asked why her legs weren’t normal. While I don’t lie to my kids, I also don’t tell them things they don’t need to know at 9 years old. She doesn’t need to know that she had a twin that died and that she was crushed in utero. How would that help her? That would only leave her with questions and sadness. I explained that the way she was positioned in my tummy left her very cramped and her legs didn’t have room.

I know she had seem pictures of herself in casts. Maybe it was so long ago that she had forgotten but she had casts from her toes to her upper thigh from 3 days old to 6 weeks, that were changed weekly, each time adjusting her feet to turn a bit more.

I said to her as a mommy I was scared. I didn’t know that she’d grow up to be able to do all the wonderful things she can do now. She’s my kid that never stops moving. Currently her latest obsession is gymnastics and it’s all she wants to do and talk about. For the kid who our 20 week ultrasound we were told “many people years ago would have aborted for this because it often goes along with neurological issues” to my funny, crazy, spitfire who is always running, jumping and dancing…it’s been an interesting road.

I was sad, though, that she didn’t remember or that it felt like she didn’t know this. I have never hid anything, but at 9, it’s just not a huge part of our life anymore. She still sees the orthopedic doctor every so often because she has hyper mobility and they keep telling me as she gains muscle that will help (so far she’s still able to bend like a pretzel).

It just broke my heart to see tears in her eyes that she was born perfect. First, no one is perfect and though she knows that, she didn’t get that there was something really wrong. It led to a long talk about my relationship with her as a baby and how I kind of became overprotective and a bit of a baby-hog. I was so convinced she needed to be protected (don’t even ask me for what, looking back I’m sure I had some kind of postpartum depression) that I just wanted to hold her and love her.

My other two kids were amazing with her. They loved her from day one and wanted to help. I was so blessed because I didn’t have the whole sibling rivalry on top of everything else. In fact, they mostly fought over who was going to help get her a diaper or hold her, etc.

We are very lucky that my daughter is okay, though I get very stressed for each orthopedic appointment that they will tell me she’s going to need some kind of surgery. Our next appointment is in June and we’ll cross that bridge when we come to it.

Even though I wanted to go to bed, my conversation with my daughter was so important because I know she went to bed knowing how much she was wanted and loved and that from the very moment I saw her, I loved her with all my heart and never wanted to let her go. It doesn’t hurt that she also feels a little special that she’s the only baby the nurse didn’t insist on weighing, etc. before handing them to me. That bonding moment is something I’ll never forget.

I miss having babies. My kids send my over the edge on a daily basis, but there aren’t even words to describe the intense love I have for them. They are my everything. They are what I’m most proud of; what I’d do anything for.

So not really an autoimmune blog tonight, but this situation really hit me hard. Someday I know I need to tell her she had a twin…mostly because her siblings know and I don’t want her to hear it from them, but I worry that she’ll start feeling like a part of her is missing 😦

These things keep me up at night.

Aside from still being nauseous, my joints are not the best today, but still not horrid. It’s like they are just saying…hello, we just want to remind you we’re here and we could start casing pain at any given moment. I know. I know. I’m taking it easy!

 

** Disclaimer: the pic above is not my daughter, but another baby that needed the same Ponseti Method of casting. My daughter’s legs were a tiny bit more severe in terms of the beginning stage, BUT…they were deemed not to be what is considered “clubbed feet” which is what can often go along with neurological issues. Hers were positional based on being crushed be her twin in utero. The pic was just to give an idea because it’s hard to describe.

 

 

 

 

I Feel a Migraine Coming

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Those of you who get migraines know exactly what it means to feel one coming. While I know everyone is different, for me it starts with trails of light as I move my eyes. I don’t have the pain at this point, but I know it’s coming.

While we’ve had a little reprieve from the freezing cold weekend, we are getting a little bit of snow tonight and a lot more is coming our way on Saturday. While I can definitely relate my migraines to hormonal changes (period week is hell), I find that the pressure with storms really affects me.

The more I read about and talk to people with fibromyalgia, migraines are a common thread for many of us. While my fibro and rheumatoid arthritis cause me a lot of pain, nothing compares to a migraine. When it’s bad, I can’t function at all. I’m useless as a mom, editor, parent advocate, etc. Just plain useless.

I’m hoping to head this migraine off by taking some Excedrin. I don’t want to pull out the Maxalt just yet. I’m like a crazy person. I feel like I have to hoard those for horrific migraine days. I didn’t take Melatonin earlier tonight because I thought I’d be exhausted. I was up late editing last night, and I worked a full day at the office today. That means no time for a quick nap or a cuddle with my cats.

One new thing I’ve been trying is essential oils. I know there are a lot of great companies out there, but since I have no idea what I need or want, I bought a sample pack on Amazon. No idea even what brand they are, but I love them. I use the peppermint when I have a headache coming on, lemongrass just makes me feel happy, lavender to help sleep, and then there are a few others. I only bring this up because of the migraine issue. If you haven’t tried peppermint oil, it’s worth a shot.

While it doesn’t take the place of medication (sorry, I wish I could say it did), I do feel a noticeable difference when I put it on my temples. A friend just told me about a certain blend that is good for fibro. I’ll report back on that if I buy it. It’s from doTerra, which is supposed to have wonderful products, but they are pricey.

Why I’m a Crab Today

I think I’m crabby because even though it wasn’t a bad day, I just don’t feel great. I hate to complain when I know I have days where my pain level is far worse, but it’s exhausting just not feeling great. I can’t remember the last time I woke up and felt refreshed by a good night’s sleep. Heck, even on a great Ambien night of sleep I still wake up exhausted.

Maybe BLAH is a better word. I’m blah because I haven’t had a day without a freakin ache in so long. I’ve been under my heated blanket since 5:30pm and my fingers are still like icicles (thanks Raynaud’s). So there, that’s tonight’s post. I’m blah and I hate it.

Tomorrow begin my weight loss journey with Ideal Shape. I don’t want to bore anyone, but I feel like if I hold myself accountable on the blog, maybe I won’t eat a bag of cookies or chocolates. I’m actually excited even though I technically started smaller portions and cleaner eating on Monday (we are going to ignore the Pepperidge Farm cookies I scarfed down when I got home from work).

Worst case scenario, tomorrow night I’ll be reporting back that the shakes were horrid. Best case, I’ll like them and feel full between the shakes, snacks, and drinking way more water than usual. They want you to take your weight and divide it in half, and that is the amount of water you should be drinking each day.

Hopefully, I can do that! We’ll see. I just want this extra weight off in time for summer.

Oh and to finish up, I was invited by the women who work at the pediatrician’s office to see 50 Shades of Grey. What the hell was I thinking when I said yes. I didn’t even make it a quarter of the way through the book…they lost me at “butt plug” and the whole contract thing. I know I said I was making an effort to be more social, and they are all super nice, but dear lord…I wasn’t planning on seeing that one. Should be interesting. I’m either going to cancel for fear of not knowing anyone, or pop a half a Xanax and force myself to go!

Before I admit that the half an Ambien is kicking in, I just wanted to say hello and thank you for all the new blog followers. Thank you Goddess Simmons Drew for sharing the blog on your FB group. Connecting with people that understand what it’s like to have an autoimmune disease and the crazy roller coaster it is, has made a world of difference to me. We’re not alone.

A Day of Ups and Downs

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If you read my post from last night, you know I was up late waiting for my eBay auction to end. I’m happy to say that I’m the proud owner of a sushi chef nutcracker (pictured above). So, my day started out on a high note.

My kids religion class was canceled this morning because the roads were very icy here in CT. People were posting on Facebook all day about accidents in town and nearby, so my plan was to stay in our jammies and watch television. My kids got a huge kick out of the Game Show Network. It was actually a really fun few hours until it got awkward when the questions on Family Feud included things like, “Name something that would be surprising for your husband to bring to bed on your honeymoon?”

Yep! When I yelled out “book” the kids all wanted to know why. I opted not to seize the moment and discuss what a man and a woman usually do in bed on their honeymoon.

My girls really wanted to go see Into the Woods this evening. I’ve been going back and forth about it because some people have said it’s too scary (they are almost 8 and almost 10). Others have said that the graphic stuff isn’t shown, so it would be fine. I don’t think they’ll pick up on the sexual things from the wolf (another reason not to prolong our Family Feud conversation), but I don’t want to pay all that money and have to leave because my youngest daughter is too scared.

When I finally got the urge to shower today, I went downstairs to grab something and water was pouring into my finished basement from two different spots. Last night we thought a bit of water was coming in from a pipe, but today it was clear that Mother Nature was to blame.

As I freaked out running back and forth to the two spots with the shop vac, I realized I wasn’t going to be able to keep that up for very long. My husband finally got home and began to build a trench leading the water from the crazy ice and rain away from the house.

Within about 30 minutes, the water slowed way down and it’s all but stopped now. It wasn’t what I planned on doing today, and it pretty much sucked. Despite sucking for the obvious reasons, add to that being on my hands and knees with the shop vac and that sent my joints into complete hell and subsequently canceled our movie plans. Actually, we also heard the roads still weren’t great, so that helped make my mind up to take the kids tomorrow. Praying that’s the right decision.

I’ve been researching weight loss plans to deal with the weight issues that having been, well, weighing me down for a while now. I need something that takes a lot of the guesswork out. I tried Take Shape for Life last year and I actually liked some of the food, but I didn’t do so well. I don’t know what to attribute my failure to. I think after the really tough first week and only losing three pounds, I was frustrated. People in the online support group were reporting 7-10lbs gone and I had a measly 3.

Anyway, I think I’m going to try another program that involves two shakes (or meal bars) per day and a healthy meal. They actually want you to eat every three hours. So what’s going to be different this time? I really wish I could answer that. The drive is there. I need to suck it up and do it. The programs I looked at included Ideal Shape, Shakeology, Isagenix (which a friend has been trying to get me to do) and 310.

Based on the ratings and the prices, I chose Ideal Shape. I’m going to give it my best shot. I hope to be able to order it on Tuesday. Up until yesterday I had my heart set on Isagenix. Two friends had great results, but it’s about $500 if I include the snack I’d need to get through the cleanse days. It also didn’t get rated as high as Ideal Shape in some categories.

Basically, the problem is me. I don’t feel that I’m eating enough to be this weight, but I’m going to give a serious two months to this program while I’m waiting for an appointment with another endocrinologist who specializes in endocrine issues other than diabetes. I tried taking the Metformin to treat the PCOS, but it made me nauseous and I didn’t have the insulin resistance that goes along with PCOS. I wanted to try something so bad, but I don’t want to be on a medication if I don’t truly need it…especially one that makes me nauseous.

This program also has some CDs to help me with self-hypnosis. Yep, I’m three shades of crazy, but I either have to be all in or not do it at all. I’m in. I want to look like myself this summer, not some fat version of me. The other thing is, losing weight has to help relieve the knee and ankle pain (I hope) from the rheumatoid arthritis. I also plan to chronicle my journey (even if it’s boring as hell) as a way to hold myself accountable.

I’ve also been going back and forth about going back on Plaquenil to deal with my arthritis pain. Also on my list to do this week would be finally going to get that blood test that my rheumatologist wanted me to get. I think it was called a Vectra blood test. It’s supposed to look deeper into the issue of RA, and once and for all have a definitive answer. Every specialist has something different to say.

Most agree that I have fibromyalgia. One thinks I have both fibro and RA. And let’s not forget the Raynaud’s. Can I just say that winter completely sucks with Raynaud’s? My fingers and toes are like painful icicles. As far as I know, though, there’s not much that can be done for it. That which does not kill us…oh whatever!

So Sick Today

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As I mentioned in my last blog, I was starting Metformin this week. I thought I was doing okay with it. I certainly didn’t have the “bathroom issues” that were commonly mentioned. I just felt a bit nauseous, but nothing I couldn’t handle. Until Friday. I had dinner, and my foot was again in hideous pain so I broke down and took a pain pill. Well the combination of the two sent me over the edge and I began throwing up violently around 1:00AM.

It was awful and I ended up not being able to sleep until close to 4:00AM. I was hesitant to eat anything this morning, but I ate a rice cake with peanut butter. I figured that was bland enough and I held it down okay. We went to my daughter’s singing lesson and then to Nutcracker practice and somewhere during the ride I lost vision in my left eye and I was in a full-blown migraine feeling like I was going to throw up.

I decided to go through the drive through and get a soda to try and calm my stomach. It was so bad that I asked the lady for a plastic bag just in case I couldn’t make it home. I ended up getting home safely and put ice on the back of my neck for an hour before having to go back.

Again, I had an hour or so of feeling okay, and then it was back and I was trying to get back home before tossing my cookies. I feel like I have very low blood sugar; that disoriented, cold sweat, nausea, etc. I slept for two hours and felt a lot better but needless to say, I’m not taking that medicine tonight. I’m going to take another day off tomorrow and try and start it at half the dose on Monday.

When I asked on the PCOS board, many people said they felt like that for a month or two. A MONTH OR TWO? There’s no way in hell I could be like this for a month or two. My son has his football conference championship tomorrow, and I need to be there. I can’t be puking at home.

I was forced to eat a slice of pizza by my family and surprisingly, I think that helped with the queasiness from the low blood sugar. I’m just hitting a wall. I want to lose weight and feel better, but I don’t know if this is the way to do it. I don’t want to be nauseous and puking all the time. Metformin may very well help with my PCOS, but given the fact that I have decided to go back on the plauqenil this week, after I see my rheumatologist, I don’t want to be on both. I’ll tell him everything and see what he says.

My foot has been in that terrible pain either once a twice a day since Halloween. Someone online scared me by saying they felt that kind of pain when their hand deformity started. It felt like the hand was clamped in a position, and that’s exactly what my toes feel like.

Last night really scared me. I’m not ashamed to say I was on the couch crying for my mom. Sometimes you just need your mom when you’re that sick. My mom can’t be here because she passed away at 43, so then I became irrational and started thinking I was beginning to get deformed feet, I was so sick and there was no end in sight, and I need someone to make sure my children are raised the way I want them to be if something happens to me.

Everything was hitting me at once, and add the puking to the mix and I honestly felt scared that something bad was happening. I spent today trying to imagine what my month would be like if I continue with the current meds. I don’t know what to do. I suppose I should call the endocrinologist and ask questions. At the moment, my focus is on being at my son’s football game tomorrow morning. That’s the only focus for now. My sister-in-law is taking the girls to dance for me.

I know my mother-in-law has big plans to go shopping for a new kitchen table for us, which is just so nice, but I don’t want to see her spend the money that she wants to spend. I have two ways to look at it. Her son doesn’t make a lot of money in their family business and we are living paycheck to paycheck. I keep hearing how it’s going to get better…for years. I know we can’t afford to replace the table now and I also know how much she has bought for her daughters. I shouldn’t feel guilty that she wants to do something nice. Her heart is in the right place, and at least this time she’s letting me choose the set (a nice step from when she showed up with all white furniture for a home with three kids, three cats, and a big black dog).

We just found one for half the price at Raymour & Flanigan that I liked just as much. She’s concerned that the one she found at Basset was heavier and will last forever. I’m not even sure I’m going to be up for this tomorrow. Like I said, first things first, I need to make it to my son’s big game.

I’m saying my prayers now that he has a great game. His confidence is increasing now that he’s further understanding the game, but I’d love to hear the announcer call his name for a tackle. His last tackle, they just announced the kid who got tackled and I know he was so disappointed (usually they say both names). If I had one wish, other than a team win, it would be for him to have some sort of special moment. Even a small one would mean the world to him.

I’m off to try and sleep. Wish me luck!

No New News; Just New Medicine

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My appointment with the endocrinologist went pretty much as expected. My bloodwork all came back in the normal range. As I sat there about to cry, I made a last ditch effort using the the research I did on Metformin being helpful for PCOS, and much to my surprise he agreed to try it. I didn’t see that coming. I was ready with my arguments, but he said that he has seen Metformin help with some patients even when their bloodwork did not show an excess of androgens (male hormones).

So here I am with my new prescription and I’m on the Facebook pages for PCOS reading the horror stories of side effects. It’s mostly stomach issues…people saying they couldn’t leave the bathroom for days. Sounds like a real joy! I opted to only take one pill yesterday as people were saying it was helpful to work up the dose.

I didn’t have any side effects at all, so I figured why not try both doses today. I took the second dose with dinner around 6:30 and I feel like I’m sitting here waiting for something to happen. Fingers crossed that I don’t have issues tonight. I have enough issues already.

Today was hectic. I had a team meeting about 45 minutes away and then sat in traffic for an extra 30 minutes on the way home. I wish I had more interesting things to say today, but at the moment I’m supposed to be editing a military fiction novel and I just can’t concentrate on it. I have another novel waiting to be edited so I need to force myself to get through it.

The novel itself is well-written. I don’t have a lot of work to do in terms of the editing itself, but I’m not familiar with all the military terms or places in Vietnam, so I’m spending a lot of time looking things up. I’m having a hard time focusing at all lately. I just have so many things going on. I know I’m trying to do too many things. What mom doesn’t? But it’s difficult to keep up.

Between Halloween and standing out in the freezing cold for 2 hours on Sunday to watch my son’s football game, I’m really feeling the effects of having an autoimmune disease. My feet were so swollen after walking around in my slippers on Halloween that I couldn’t fit in my shoes on Saturday. I squeezed into them (with my usual brilliance) thinking they’d loosen up, and within about 5 minutes my feet swelled so much that I had to turn around and go back home to get other shoes.

I want to be there for every special moment with my kids, and it’s just really hard when the after effects cripple me at times. It doesn’t mean I’m ever going to stop trying, though. It’s just frustrating.

I’m also learning that just because you care about someone doesn’t mean they deserve it. I guess I’m that person that always hold on to a little bit of the good in people. There are very few people in my life that I hate, if any. I just try and make peace with things and move forward. I’m frustrated because I’ve now had someone try and come in and out of my life as one of my friends is doing now. He’s not even my friend after all the crap he’s pulled. I guess I’m just confused as to how someone can be in a serious psychotic state and then a week or so later act like nothing happened. I am chalking it up to mental illness and trying to just cut off ties.

Okay, I have to get back to my editing.

Being the Bigger Person Sucks

American Football 2

Be the bigger person, blah blah blah. You know it’s what you’re supposed to do, and most of the time it’s the road I choose to take, but no one ever said it was easy…or fun. Today I was a room parent at my daughters’ Nutcracker rehearsals. Honestly, I love doing it. Getting to see them dance and perform is awesome, and it’s just a fabulous production. I love to see the behind the scenes of how they choreograph the numbers.

So that all went well. The problem arose when my former friend’s (the ass who hates that I blog) daughter was freaking out about not having a parent to pick her up. I let her use my phone to call her dad, and I guess there was some kind of mix up with the what he was saying and what the mom said.

He called me back a few minutes later to say that her mother should have arranged that. I had to explain that she wasn’t allowed to stay for an hour and a half between her two rehearsals because we’re still practicing at a studio and not on the big stage. He grew silent like it was a big deal to get her, so I (the bigger person) offered to drop her off at home. Why did I do this? I have no idea, mostly because I’m an idiot.

The kid is very fresh. I cut her slack because she’s had a tough time in her short life. She was snapping at me on the way because clearly, I got the info wrong. Not sure how I even factored into the situation, but I just said that she and her dad would work it all out when she got home.

Later, I received a text thanking me for the help. Then another text blaming the mom. I just texted back “no problem” and left it at that. I am not opening that door again. His level of drama gives me more stress than I can handle.

Then there’s my feet. Both feet are still swollen from last night’s trek around the neighborhood with the kids. My body is getting even with me for my crazy cat lady costume and wearing slippers. The toe pain from last night finally subsided, but I feel like it’s going to cramp up at any moment. I’m sitting here with a heating pad on it. I’m not even sure what the issue is. It feels like my pinky toe wants to lean left, and every time I move it slightly to the right, I feel like it’s going to get stuck again and cramp up.

It sounds ridiculous, but I’m in a lot of pain. Both my hands and feet are swollen, and on tomorrow’s agenda, in between shuffling the girls to rehearsals, I have my son’s playoff football game. It’s all in the same town, so it’s not a lot of driving, but Connecticut has been really cold the last few days. Today was just awful.

I’m trying to keep going until I see the endocrinologist on Tuesday, but if he says there isn’t anything wrong with me and he has no idea what’s going, then I’m making an appointment with the rheumatologist to start Plaquenil again. I’m hesitant to do it before meeting with the endo because I hate to start medications at the same time. I don’t have much hope for Tuesday, or at least I’m trying not to get my hopes up, but I’d really like to try the metformin and see if that has an impact on my weight and other issues related to PCOS.

Wish me luck on getting through tomorrow! I’m going to buy those disposable hand and feet warmers and hope they help. I’m going to need all the help I can get.

Don’t forget to turn your clocks back! An extra hour of sleep is always awesome. It’s waking up in the dark and having it be dark at 5pm that sucks.

 

 

 

Arthritis Hands Suck and Other Musings

cat-pictures-5

Everyone is posting on Facebook with their pumpkin recipes, jack-o-lanterns, and fall-themed things. To me, fall means the start of cold weather and the start of increased pain. Today was the first day in a while that I spent in bed most of the day. I couldn’t get warm, even with my heated blanket. My hands were cold, stiff, and painful. And to top it off, my youngest daughter faked being sick (age 8) because she missed coming to the gym with me.

You know those times where you are in a lot of pain and just want to sleep and something is talking incessantly? Yep, that was my day. I got to watch youtube videos on how I need to do her makeup tomorrow for her Elsa costume. She talked and talked…and talked. Even though she was incredibly annoying today (and I say that with love), I love the age she’s as and her out-of-the-box thinking. I love her exuberance about everything. Even on days like this, I know I’m very blessed to have my kids. They are everything.

I just spent the last 20 minutes on Amazon shopping for heated gloves. Those suckers are expensive. I’m going to try and buy a set of those heat packs for gloves and see if that helps. I have to go to my son’s football game on Sunday and it’s going to be cold. I don’t want to miss it because it’s the first game that he’s a starting player. I know I have written a lot about my son, and that he’s just not the star athlete that he wants to be, but for him, this is a huge moment. The coaches noticed how hard he’s been working and playing and they shifted him to a starting player because of it.

Don’t ask what position he’s playing because I probably don’t know, but I have heard nose guard and some other kind of guard. Someday I’ll be a football mom and understand the game, but for now I’m just super proud of my son. I feel guilty without much to say about my middle daughter today. She is thrilled that I’m going to be the room mom at Nutcracker this weekend and that I can finally see her practice the Ginger Clown piece.

I feel like everything else I have to say tonight is more of a grumble on not feeling well. I’m trying to keep my head up for my appointment on Tuesday, but I have to be prepared for the “non-answer” and no solution. I just want a reason for getting this heavy. I’m not eating enough to be this fat. I never thought I’d be one of those people looking for the quick fix to lose weight, but at the moment, that’s me. It just sucks. I hope the endocrinologist will at least let me try metformin based on my symptoms. but I have no idea.

Tomorrow is a busy day and I can’t sleep (even with a half an ambien). I have to work with my tutoring client and then my daughter’s class has a large pumpkin carving event at school. The whole fourth grade participates and she’s so excited about it. Then we’re coming home and getting ready to go to a party at the neighbors for Halloween. It’s very casual, and then we’ll go trick-or-treating. I know it will be fun, but walking around in the cold doesn’t sound appealing at the moment. I’ll get in the spirit at some point during the day tomorrow.

I just wish I could get some sleep now so I can stay awake and have some energy for it. I’m off to try. Sleep well friends!

Shin Splints, Fat, Nutcracker, Football and More

Shin-Splints

I just couldn’t decide on a title. It’s been a while since I’ve written a blog so I have quite a bit to catch up on, though not that much news in terms of my health. I guess I’ll get that update done first. I’m huge. Enormous, even. That’s just not changing, so I can’t wait until next week when I finally have the appointment with the endocrinologist. I am a little afraid that he’s going to shrug me off because my initial blood work does not show a thyroid issue, but with a strong family history of hypothyroidism and the fact that I have every other symptom on the list, I’m at least hoping he’ll do more testing. I’m not eating enough to be this fat!

In similar news, I’m back trying cardio even though it’s not that easy. Yesterday I walked 3 miles in my neighborhood, and not the flat 3 miles. I walked the huge hill route, which I regretted on the way back to my house, which is all uphill. I was able to do it, and I’m not sure who was huffing and puffing more, my fat dog or me! In an effort to continue the cardio trend, I went to the track today in the hope that I could job a bit, but when I started I realized that I did too much yesterday with the hills and my shins were in terrible pain. I didn’t want to push myself further so I opted to walk the track (in pain) for a mile and a half.

It was a lot less than I wanted to do, but it was still something. Tomorrow I have to teach my class in the morning and then I will attempt to do my flat walk through the neighborhood or if my shins are really hurting, then I’ll do my boring elliptical instead. I’m trying…

Tomorrow is also the big day where we get the call about roles for the Nutcracker. My girls are so excited. I am in a panic at the moment. I know my younger daughter is fine. My older daughter would really be happy with any part that isn’t in the Battle scene, because she’s been both a mouse and a soldier, and she really wants to do a more ballet role. We put down that the role(s) she was hoping for were the party scene or a flower bud (the youngest of the flowers in the flower dance). I know she’d be great at either one, but I don’t know if she showed enough ballet. So here I am praying that tomorrow’s call goes well.

Last year when she got the role of a soldier she was devastated because “that’s a boy role.” She ended up seeing it through and having a good time. She even asked for a second role and got it. The thing is, she’s not this outgoing kid that stands out in an audition. She doesn’t jump to the front and raise her hand when they ask who can do something. She’s very shy, but getting better all the time. If you can spare some positive vibes for me tomorrow, please pray that I get a good phone call. To see her get a role that she really wants would be so awesome.

And now my football update. First of all, it’s not a newsflash that I’ve I’ve learned anything about football. I still don’t know anything. BUT…I did see my son make a tackle! It was in a play right after he did something wrong and I saw his dad shaking his head in frustration. He just doesn’t think my son has the drive to play football. He’s too afraid. Then he went into the next play and took the ball carrier down. Even I knew that was good! I got a picture of it, too. The best part of it was talking with my son later that night and hearing him say that he thought it was his best game ever because he felt like a valuable player. He was so proud of himself.

Oh…back to my rheumatoid arthritis for a moment, I’m still really suffering with stiffness and pain in my knees. I’ve decided to wait until after I see the endocrinologist before I call my rheumatologist to get in for an appointment. I’d like to see if the endo is really going to do anything for me before I discuss going back on the Plaquenil, but that seems to be where I’m headed. I don’t think I’m mentally ready for methatrexate. I think that’s the next step after Plaquenil. I believe I’d try the Plaquenil again before I’d try something different. I stopped it because my issues were really stemming around the fibromyalgia. The deep tissue muscle pain in my shoulders and under my head were bothering me terribly, but my joints (with the exception of my hands) were doing okay.

As the colder weather is starting, my hands are starting with the stiffness and swelling. My feet were pretty darn swollen after yesterday’s walk, too. But, what’s bothering me the most are my knees and hip because those hurt while I’m standing and walking. The pain and joint stiffness are just making things a lot more difficult. So, the decision is, that I’ll make another appointment with the rheumatologist after I speak with the endocrinologist. Do you ever feel like your life is seeing specialists?

Quick recap:

Endocrinologist-October 9th

Nutcracker decisions- tomorrow (I might need several Xanax)

Football-not as horrid as usual

Knees-suck

Have a good night everyone!

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