Glad That Migraine Is Over

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Last night sucked. I had a horrible migraine on and off since Saturday. Yesterday was bad enough that I used one of my rationed Maxalt. Even the generic is so expensive because my insurance has a rider on migraine meds for me. I hate them for it. Just throwing that out there.

I was up until 4AM, mostly playing online Words with Friends and Dice with Friends. I’ve been doing a lot of donation requesting from companies for an online auction that the nonprofit I work for is doing in May. I don’t mind doing the requests by email, but I’m definitely not someone who will go into businesses and solicit donations in person. I hear that yields great results, though.

While the Maxalt helped for a few hours, the migraine came back in full force by last night. I had to cancel plans to go to the Capitol today for Special Education Day. It just wasn’t going to happen with blurry vision in one eye and a pounding head.

I’m doing a lot better now, but even though it’s been a long day. I hardly got out of bed until like 1:30PM. I hate when that happens, but I have to accept that there was no way of getting around it today. My body was not having it. Even though the weather is warming up to a balmy 40 degrees, my hands are still swollen  and sore in the morning. Today was just all around crap.

We have 12 more days until the puppy arrives. I can hardly stand the wait. We just want him here! He would have arrived today if they let him go on my friend’s transport, but the 28th will come soon enough.

I’m going to try to go to sleep early, despite the fact that I slept all day. I just feel like I’m fighting something and I can’t tell whether it’s the beginning of a rheumatoid or fibro flare. I often feel like I’m getting the flu when I get a flare…that almost sore throat, achy body feeling.

I hope you’re all have a better day than I am.

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I’m Still Here…Just a Hiatus

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I didn’t even realize how long it had been since I had written a blog. That’s the problem. I was in the habit of doing it every single night, without fail. I allowed myself to take a night off during my extreme physical exhaustion and it turned into a whole hiatus! Let me catch you up. I’ve been tired. I still have a headache on and off…mostly on. Today is the first day in a while that I haven’t had to take an Excedrin Migraine.

The headache has been draining. I almost missed out on our neighborhood girls’ night of Bunco on Friday, but I decided to suck it up and go anyway. I ended up needing to pop some Advil halfway through the evening just to get me through, but I really needed to get out of the house. I feel like I’m here home working, sleeping, or taking care of the kids. It felt good to get out and laugh.

Last night was my friend’s bachelorette party. It was very low-key. It’s her second wedding, and we’re all in our early 40s. We’re not exactly the strip club crew, so we decided to go to this wine and painting night at a local club. The have drinks and food, and offer a painting class. I haven’t laughed that hard in weeks. All of the sudden I felt like I was Van Gogh with two ears, blending my yellows and dry brushing to get the perfect hue. I took step by step photos, which you will see throughout this blog and posted them all over my Facebook page, and literally laughed throughout the whole thing. We had a great time.1973376_10203789404836964_7147673850525718626_o

Today was a mix of running way too many errands. The first of which was bringing my bridesmaid dress to be fitted (finally). There is nothing like waiting until the very last minute to realize that your boobs doing fit in the fucking dress. Yeah…that was my morning. I’ve never had a shortage in the boob department, but with some extra pounds, there are extra boobs. I haven’t changed since they measured me, so I didn’t think to try it on–big mistake! So, the plan is, the dress lady is going to try and let the dress out in the boob area about 1/2 inch, and I am on a diet of celery and water, HAHA!

We were able to zip it up, but it wasn’t very comfortable. The good news is that it isn’t low cut, so although it’s tight, I’m not hanging out everywhere, but it would really help if I could drop three or four pounds this week. I’m going to try buying one of those minimizer bras that supposedly takes off two inches, but even the seamstress wasn’t sure that would work. At this point, I’ll give it a shot. The rest of the dress fits well, and I don’t look as bad as I thought I was going to.

It’s not what I’d have picked, but I’m not the bride. I did find adorable shoes at DSW. OMG, I have never been to DSW. That was quite a treat. I’m not really a shoe person, or at least I wasn’t until I went there. I didn’t have a lot of money, and I had the girls with me (who were picking sparkly hot pink 6 inch heels), so it wasn’t a great time to shop for me. I found some really pretty silver sandals to go with my dress, so that crossed all my wedding stuff off the list.

My exciting news to report is that my daughter got the part in the Wizard of Oz that she tried out for. It’s a tiny Munchkin role, but she’s so excited. It’s a very big deal to her, so I’m excited. We went to the first cast meeting tonight, but the rehearsal don’t start until June. It’s going to be a lot of fun to see her on stage. They actually had a few Munchkins drop out so now they asked if any of the kids had siblings that were interested. I came home and asked my youngest daughter, and as of now she says she’d like to do it. We’ll see if she still wants to do it on the day of the audition.

As for autoimmune life, besides the migraine hell, my hip is still giving me a lot of pain. It resonates down my leg at times, giving me even more pain, and when it’s cold my hands and feet still go numb. This morning my two fingers got stuck again for an hour or so. It’s annoying. I keep hoping that it’s going to get warmer and I’m going to feel better. Heck, it’s almost May. It’s still not warm. In fact, I had a jacket on today. The sun was going in and out and the wind was whipping around. It was so windy earlier in the week that it blew my patio table all the way across my deck.

 

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This picture above was one of my favorites.  posted it with the caption “Nailed It.” I had so much fun with that damn class. I need to do more painting. I actually love to paint. I made each of my sister-in-laws a beautiful set of table and chairs for their baby showers, painted with their baby theme, and I painted a toy box with a safari theme for one of my best friends. I enjoy it very much and find it very relaxing. It’s actually something I wish I had more time and space for. I don’t consider myself overly artistic, but if I have a basic outline to work with, I do pretty well.

As my psychic client told me, I need to find more time to do things for myself. Perhaps painting will be one of them. Right now, my hip hurts too  bad to think about much else. Time for my heating pad and hopefully I’ll fall asleep sooner rather than later. I am glad to be back, and I hope everyone has been relatively pain free. Lots of crazy weather going on all around and I know that affects us autoimmune peeps. Check in with a comment and let me know how your doing!

 

Can’t Take the Pain Today

Photo by MyBestTreat

Photo by MyBestTreat

I thought about skipping the blog tonight, but then I thought, what else I am going to be doing while I sit in writhing in pain. My head hurts so bad and nothing is helping. I took a Dilaudid over an hour ago and it hasn’t even touched the pain. I feel like this migraine has been with me on and off for the better part of like 6 days now. I didn’t wake up so bad, but I spent a few hours working on a website for a tree company. Anyone need to know anything about ornamental tree pruning? I probably have the answer today!

My head started pounding by the afternoon. I had to bring my youngest daughter to the doctor for a check-up for her asthma, and we ended up waiting in a room for over 45 minutes. As each minute passed I thought I was going to keel over. By the time he came into the room, my head was in my hands and I was not well.

I don’t know what’s going on. The only thing I can think of is that my allergies are so bad right now, and sometimes that triggers migraines for me. The other thing that crossed my mind was that I had those trigger point injections last week. I suppose if I’m like tomorrow I need to call. I also need to cough up the money for my Maxalt, the only migraine medicine that works for me. Even the generic is $190 for four pills.

It’s hard to justify spending that much on four pills, but I can’t keep going like this. Sorry for the short blog tonight. I feel like hell. I’m going to try and put ice packs on my neck and eyes, and take an Ambien. It’s probably a lot of medicine with the Dilaudid, but the pain medicine did nothing. It didn’t even touch the pain that stretches from my left shoulder blade and wraps all the way around the left side on my face. If I make it through this with out throwing up, I’ll be shocked.

I promise…tomorrow’s blog will be more uplifting.

This Migraine Can End Any Time Now

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As usual, things didn’t go as planned today. I woke up fairly sore, but I made it through my class and pushed myself quite a bit. That was about it for energy exertion today. I came home at 10:30AM and slept until 12:30PM. It wasn’t just that I was tired, I was downright exhausted. My whole body was fatigued.

The nap should have helped, but I woke up feeling like my migraine was coming back. My plans of using my elliptical machine while watching The Young & The Restless didn’t quite happen. I did get on the thing two separate times today for nor more than three minutes. I’m disappointed, I’m fat, and I’m unhappy…but I know if I pushed it much further today, I’d be shot tomorrow, and I can’t afford to take that chance.

My daughter has a small role in a play and there is a dress rehearsal tomorrow night, and shows Thursday, Friday, Saturday, and Sunday. Not exactly looking like I’m going to get a lot of rest in the next few days. I know I need to pace myself, but I hope tomorrow is a better day.

My hands have still been a huge annoyance. When I’m holding weights to teach my class I can see my fingers turning red and swelling. It’s like my hands just don’t want to work in the morning. I suppose they get better as the day goes on, but when it’s cold I don’t get much relief.

Now…to get rid of this freakin migraine. I’m breaking out the essential oil tonight. A little peppermint oil, a heating pad on my back, and an ice pack on the back of my neck. Say a prayer that I don’t wake up with it tomorrow.

In Migraine Hell

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I thought a good night of sleep would help get rid of my migraine. I was wrong. I woke up unable to see out of my left eye and in terrible pain from my head to the base of my skull, and down through my shoulders. I took some Advil Migraine and set off to teach my class because I didn’t really have a choice.

Between the medicine and the exercise, I left feeling a little better, but I came home to lay down and it all went down hill again. We didn’t get too much of a storm but what we did get finished many hours ago, so it can’t just because of that. I don’t know what caused it, but it better be gone by tomorrow. Can you imagine having a migraine with six loud, giggling girls and a sleepover party? I don’t even want to think about it.

I have my heating pad on the top of my shoulders, and it’s not doing a damn bit of good. I’m due for another dose of migraine meds, and I think I’m going to take an Ambien. I am just tired of the pain.

I did end up doing a few minutes on my elliptical. That shit is hard! I have to work up to it. I found myself  looking at the clock and thinking…oh my god, it’s only been two minutes! What the hell happened to me? I used to be able to teach or take all sorts of classes. Now I’m not in control anymore — rheumatoid arthritis and fibromyalgia make the decision on whether I can do things.

I need to be okay tomorrow. I need to be a great mom, and help my daughter have a great party. Then I can fall apart on Saturday, but I need to pick myself up again on Sunday to have family over to celebrate. Is it sad that I’m looking forward to Monday?

A Storm and a Migraine

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I’m like a human barometer. When the pressure drops and we are expecting a storm, I get a migraine. So far it doesn’t look like we’re getting too much snow, but tomorrow morning may be icy because the temperature is dropping to like zero again.

I had a headache most of the day, but it turned into a full-fledged migraine around 5pm. At that point I was listening to the kids’ music lessons, and then I had to take my daughter to a practice for The Sound of Music — neither of which were helpful to my migraine.

I took two Execdrin Migraine and a muscle relaxer because my neck was getting tight and knotted. I think I’m at my worst trying to take care of the kids with a migraine. I can hobble along in rheumatoid arthritis joint pain, or all over fibromyalgia pain, but a migraine just halts everything.

About an hour or two after writing last night’s post, I got out of bed to get a drink and the pain was shooting from my hips down through my legs and feet. The pain was completely unbearable and I had to take a Dilaudid to take the edge off the pain enough to fall asleep.

I feel like that’s how things have been happening for me lately. I go from feeling decent to a mess in a matter of an hour or two. It’s frustrating because again, it all goes back to having difficulty planning anything.

My house is nowhere near ready for my daughter’s sleepover on Friday. I have nothing planned other than doing nails, getting pizzas, and having cake. I’m guessing they will watch a movie at some point in the evening, but I really haven’t thought of anything else. My goal tomorrow is to do a little research on Pinterest after cleaning my house — yes, I’m going to try and get the majority of it done in one day.

Because of my exhaustion and headache, I wasn’t able to workout too much today. I did a few minutes (very few) on my new elliptical machine (it’s really nice by the way), and I did my ab challenge that my whole Pilates class is working on. I’m just not feeling it today.

I also brought one of my cats to the vet, which turned into quite an experience when he jumped from a scale to the top of the cabinets in the room. He looked down at the vet, my son and I as if to say…just try and get me! The vet had to climb onto the counter to get him, which was humorous. He’s doing well, but she said he could stand to gain a little weight.

I’m Italian so all I heard was that he was too skinny and off to Petco I went to buy every treat possible. Needless to say our Cheeto has been spoiled with treats all night. I’m not sure whether I’ve been worried about his eating because the two kittens are pigs. The girl, Cookie, starts sitting at her bow around 4pm and they don’t eat until around 5pm. She gives a sad “I’m famished” look every time I walk by, but I’ve learned to ignore it for the most part.

Anyway, I’ll fatten him up a bit and then I’ll feel a little better.

We have had a few new members join our Autoimmune Mama Facebook Group. If you haven’t join us, please consider doing so. We have a very nice group and I think it’s been great to connect with other people who understand what it’s like to live with an autoimmune disease.

Stupid Polar Vortex Is Killing Me

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Ok, before I get to how much pain I’m in and my autoimmune issues, for those that have been following my small town political saga, I met with the First Selectman today. I wasn’t impressed with him. While he did listen to me, he shrugged off everything I said and kept referring me to a graph he made on enrollment.

Needless to say, he’s not going to change his mind on the education budget and we’re still in deep crap for the coming year, but I feel good that I stepped up and actually got involved. There are so many people who sit around bitching about circumstances and don’t do anything about it. At least I can say I took some sort of action to make a change.

It’s possible that I was so driven because this is something I can make a difference with and possibly change in the future — unlike my autoimmune issues. My rheumatoid arthritis and fibromyalgia are not going away no matter how much want them to. I have to accept that so I’m not keen on accepting it elsewhere in my life.

With the extremely low temperatures today, I woke up with my hand completely stuck again. I just stood there in the hot shower this morning, letting the heat soak in. It was back to that painful numbness that I had a difficult time describing in another blog. While it is numb, the pain and tingling is horrendous. The only good news was that I woke up migraine-free. Last night was terrible.

Then after going to that meeting I stood outside for a few minutes talking to a neighbor, and the cold got right to the bone. My right hip and leg are in serious pain tonight. I’m considering calling my rheumatologist for a trigger point injection, but of course I’m saying that while I’m sitting here practically in tears over it. Tomorrow may be another story.

I’m guessing it’s going to be a while until I fall asleep again tonight. I don’t like taking an Ambien when I have to teach a class in the morning. I always feel sluggish and yuck. So it’s likely another trash tv night for me.

Anyone watching anything good?

Another Day, Another Headache

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I won’t say today was a bad day. I got out of the house and brought my kids to see the Lego Movie. I had a small headache when I woke up that turned into a bigger headache after sitting in a movie theater with blaring sound and flashing lights. The kids enjoyed the movie, and while it wasn’t my favorite, it wasn’t bad for me either.

I know I mentioned a lot about our local political drama yesterday and my idea to not read any of the nasty comments. The Beth Landau (bethlandau.com) commented on my blog that I needed to develop a thick skin about it. She advised me to read the comments and stick to my beliefs. She was right (thank you, Beth).

I did go read the comments…everything from me being an “abortion lover” to “as bad as Obama.” I just wonder how people jump from a person caring about the education system in their town to abortion, but it’s not for me to guess. It’s not for me to worry about or give a second thought to. So I’m not!

I had a lot of people say very nice things on Facebook regarding my letter. I also received some emails and one neighbor stopped by my house to thank me for writing it. I have to be honest and tell you she made my day. All in all, I feel proud of my letter and I still like me most of the time 🙂

We’re preparing for more of the Polar Vortex here in the northeast, which means there is a fair chance that this won’t be a great week in terms of pain. Mornings an nights are tough, but not unbearable when the temperature normal. When it’s -2, I don’t function well.

Aside from my gluten-free diet (which I have cheated from now and then), I have been trying to drink a lot more water. I’m doing research for a blog post on dehydration, which will be up tomorrow, but in general I’m wondering whether some of my headaches are caused by not drinking enough. I think it also helps me with that exhausted feeling I carry through the day.

For the past few days, I have felt more awake and active…though the downside is I couldn’t make it through the movie today without using the bathroom. I’ll keep you posted on how it’s going as it gets colder, and let you know if I see any improvement.

The last thing for the night is a reminder that our Autoimmune Mama Facebook Group is now open. Please join us and introduce yourself. I hope the group becomes a great place for us to give each other support and understanding.

Have a great night!