Another Storm, Another Migraine

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I woke up with a migraine this morning, and it seemed to get a little better and then came back with a vengeance. My neck is so tight on the right side and my vision is blurred in the right eye.

I usually take a muscle relaxer at night for my fibromyalgia, but I took one around 6pm and then another one again at 8:30. I have the TENS unit going on high to try and loosen the area up, and I have to just say that I’m hardly feeling any relief.

I’m supposed to be practicing a speech I have to give for a class tomorrow, but I can’t even read it at the moment. I hate public speaking…I’m terrified. My two directors at the non-profit organization talked me into applying for this program that is run by the state of Connecticut. It’s called Partners in Policymaking and it’s once a month for 9 months. I go tomorrow at noon and won’t be home until Saturday evening.

This is the first session and I’m in a panic, which I’m sure isn’t helping the headache. It’s supposed to start snowing at some point tonight and stop around noon tomorrow. I’m supposed to be in Hartford at noon and that’s at least an hour away without snow.

I’m praying I don’t wake up with this headache tomorrow because I don’t know how I’ll do in two 8-hour study sessions. I can hardly function as a mom when I have a migraine, let alone take notes and get up and give a speech.

My other issue today was my hands. I know I’ve complained about my Raynaud’s numerous times, but it’s so odd to me how some days there is just nothing I can do to warm up my hands. I had a heated blanket over me for the majority of the day, and my core wasn’t cold, yet my fingertips were a bluish and freezing.

I haven’t had much swelling in my hands, but the pain and numbness is awful. I am packing my heating pad for tomorrow.

My kids are not used to me going away. Even though it’s only for one night, they are kind of a mess. I’m hoping that they don’t have a snow day so we have to deal with a sad goodbye as I’m leaving. My youngest daughter just learned how to text through her iPod, so I know she’ll be contacting me often.

I have to finish editing a manuscript before I can go to bed, but the good news is that I’ve been through it several times and it’s very clean. This is one for middle-grade readers and while fantasy usually isn’t my thing, I really enjoyed it. She’s a very good writer. I’ll be reading with one eye open, though.

 

 

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It Warmed Up Outside Today, Someone Alert my Body

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I can’t get warm. My hands, fingers and feet are so cold they get numb. I wasn’t this bad all day, but right now it’s out of control. I have a heated blanket and a heating pad on full force.

I ended up taking all three kids to see Into the Woods today. Good news, my 7-year-old wasn’t scared at all. Most of the bad parts really weren’t shown. I had read the page on IMDB so I knew what to expect, but it wasn’t as violent as some people said.

I love my musicals so I enjoyed it. I wouldn’t say it was favorite ever, but it was cast well.

After that I had some running around to do before we ended up home around 7pm. My son is petrified to go to school tomorrow. He’s making a huge situation of a bad situations from last Friday. A boy, who my son thought is a good friend, asked him…no told him to go buy a snack for the boy.

Step #1 in the right direction, my son said no, rather than buy it so he can fit in. That’s a huge step. Well, when he said no, the boy got everyone else at the table to move, leaving my son alone. The issue is compounded because the dads are good friends and my son thinks the twins should be his best friends. They don’t see it that way.

He is afraid to take the bus and go to school, but we did some role playing on what he should say. I have him asking another boy on the bus to sit with him at lunch. I don’t like most of the kids he sits with anyway. It’s no skin off my back if he finds friends who treat him well. What more could I want for him

No one should feel like everyone hates them. I feel bad for him, but he does need to toughen up a little. He’s a deep thinker, but doesn’t always get when things are implied instead of said. He’s very literal. I just found out that I have a PPT for him this Friday. I need to go over all his testing to make sure they aren’t looking to drop him. Mamabear might need to come out a little.

I think they are afraid of me from last year. I’m very nice until I reach that point and then you need to step back. I’ve learned so much being a mommy to kids that are in special education programs. It could be a full-time job! I’m also lucky to help other families with these issues through a nonprofit. Being able to help families/children is the greatest feeling.

It’s week like this that I wish I could put my fibro and RA aside so I can get everything done, that would be awesome. It doesn’t work that way, though.

Anyway, tomorrow the kids are back to school. I have a morning conference call scheduled before my nap :). Then I have to finish editing a book, or hopefully two, but doubting I’ll get that far.

I hope you are enjoying a pain free evening.

 

Shin Splints, Fat, Nutcracker, Football and More

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I just couldn’t decide on a title. It’s been a while since I’ve written a blog so I have quite a bit to catch up on, though not that much news in terms of my health. I guess I’ll get that update done first. I’m huge. Enormous, even. That’s just not changing, so I can’t wait until next week when I finally have the appointment with the endocrinologist. I am a little afraid that he’s going to shrug me off because my initial blood work does not show a thyroid issue, but with a strong family history of hypothyroidism and the fact that I have every other symptom on the list, I’m at least hoping he’ll do more testing. I’m not eating enough to be this fat!

In similar news, I’m back trying cardio even though it’s not that easy. Yesterday I walked 3 miles in my neighborhood, and not the flat 3 miles. I walked the huge hill route, which I regretted on the way back to my house, which is all uphill. I was able to do it, and I’m not sure who was huffing and puffing more, my fat dog or me! In an effort to continue the cardio trend, I went to the track today in the hope that I could job a bit, but when I started I realized that I did too much yesterday with the hills and my shins were in terrible pain. I didn’t want to push myself further so I opted to walk the track (in pain) for a mile and a half.

It was a lot less than I wanted to do, but it was still something. Tomorrow I have to teach my class in the morning and then I will attempt to do my flat walk through the neighborhood or if my shins are really hurting, then I’ll do my boring elliptical instead. I’m trying…

Tomorrow is also the big day where we get the call about roles for the Nutcracker. My girls are so excited. I am in a panic at the moment. I know my younger daughter is fine. My older daughter would really be happy with any part that isn’t in the Battle scene, because she’s been both a mouse and a soldier, and she really wants to do a more ballet role. We put down that the role(s) she was hoping for were the party scene or a flower bud (the youngest of the flowers in the flower dance). I know she’d be great at either one, but I don’t know if she showed enough ballet. So here I am praying that tomorrow’s call goes well.

Last year when she got the role of a soldier she was devastated because “that’s a boy role.” She ended up seeing it through and having a good time. She even asked for a second role and got it. The thing is, she’s not this outgoing kid that stands out in an audition. She doesn’t jump to the front and raise her hand when they ask who can do something. She’s very shy, but getting better all the time. If you can spare some positive vibes for me tomorrow, please pray that I get a good phone call. To see her get a role that she really wants would be so awesome.

And now my football update. First of all, it’s not a newsflash that I’ve I’ve learned anything about football. I still don’t know anything. BUT…I did see my son make a tackle! It was in a play right after he did something wrong and I saw his dad shaking his head in frustration. He just doesn’t think my son has the drive to play football. He’s too afraid. Then he went into the next play and took the ball carrier down. Even I knew that was good! I got a picture of it, too. The best part of it was talking with my son later that night and hearing him say that he thought it was his best game ever because he felt like a valuable player. He was so proud of himself.

Oh…back to my rheumatoid arthritis for a moment, I’m still really suffering with stiffness and pain in my knees. I’ve decided to wait until after I see the endocrinologist before I call my rheumatologist to get in for an appointment. I’d like to see if the endo is really going to do anything for me before I discuss going back on the Plaquenil, but that seems to be where I’m headed. I don’t think I’m mentally ready for methatrexate. I think that’s the next step after Plaquenil. I believe I’d try the Plaquenil again before I’d try something different. I stopped it because my issues were really stemming around the fibromyalgia. The deep tissue muscle pain in my shoulders and under my head were bothering me terribly, but my joints (with the exception of my hands) were doing okay.

As the colder weather is starting, my hands are starting with the stiffness and swelling. My feet were pretty darn swollen after yesterday’s walk, too. But, what’s bothering me the most are my knees and hip because those hurt while I’m standing and walking. The pain and joint stiffness are just making things a lot more difficult. So, the decision is, that I’ll make another appointment with the rheumatologist after I speak with the endocrinologist. Do you ever feel like your life is seeing specialists?

Quick recap:

Endocrinologist-October 9th

Nutcracker decisions- tomorrow (I might need several Xanax)

Football-not as horrid as usual

Knees-suck

Have a good night everyone!

People Just Don’t Understand RA

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I have rheumatoid arthritis. If you’ve been reading blog for anything length of time, you know that I have more than one autoimmune disease. I even have more than two! I have rheumatoid arthritis, fibromyalgia, and Raynaud’s syndrome. The all affect me in different ways, but in some ways they are similar and they all suck…so they have that in common.

It’s April 18th and it is only like 40 degrees here in Connecticut. It was damp, windy, and cold today, and I’m hurting from my hips down. While my hands are still stark white and cold, they aren’t today’s biggest issue. My hips, knees, and feet are in terrible pain. At one point today my knees went numb, and I’ve been hobbling around ever since. I’m not sure if I have mentioned that I had surgery on my tow about year ago to remove a bone spur and to fix some of the arthritis damage. Every now and then it still really hurts, and today was one of those days.

I was just putting laundry away and I felt like someone stabbed me in the toe. So needless to say, I’m trying to tell you it wasn’t my best day. I also pulled something in my neck while trying to clean all the crap out from behind my daughter’s bed. I swear I’m going to call Hoarder’s on my children. I swear my son told me his room was clean at least six times today, only to have me go in there and his bed wasn’t even made, not to mention there were empty Gatorade bottles on the floor. Oh, but he “needed” those. Heaven help me when we moved his bed out. We found his football sweatshirt that he’s been missing for weeks…the one that I “must have lost while doing laundry.”

I didn’t get half of the cleaning done that I need to for Easter, but there is always tomorrow. I am not having a big crowd for Easter, but I still need to have the house looking nice. Between work, not feeling well, and the kids being home this week, the house looks like a tornado passed through it. It will get there. I have to lower my standards a tiny bit and remember that I don’t have the stamina that I used to. I don’t have the joints that I used to.

One of the high points of my day was getting out of the house alone to do a little Easter shopping. I went to Home Goods and found this fabulous metal flamingo (pictured above). Did I mention that I love flamingos? He was like 4 feet tall and fabulous, but he didn’t have a price and no one could tell me how much he was. They told me they’d call me in the morning when a manager was in the store. Yes, I know I don’t need him. I know that he’s a tiny bit hideous, but I want him for my yard. We just were forced by the state to remove 12 trees in our front yard and now the whole neighborhood can see my house.

All the neighbors know about my flamingo obsession because of my light-up Christmas flamingo. I’m sure they are going to LOVE my new flamingo, whom I have named Brutus! Let’s hope no one snatches him up before I get back there tomorrow!

The title of tonight’s blog is similar to many others I’ve written, but once again I had a conversation, this time in the grocery store, about arthritis. I was hobbling down the aisle when I ran into someone I hadn’t seen in a while. When she asked if I was okay, I explained that I had rheumatoid arthritis and that today was just a difficult day. If anything, when I run into people and explain things, I play down my issues because I don’t want to have a two-hour conversation about it. What did she say? “Is that because you taught high-impact aerobics for all those years?”

Yep! It’s completely my fault that I have an autoimmune disease. Thanks! It’s not hard enough not knowing what I’m going to wake up feeling like each day; not knowing how to plan for things because I don’t know what my pain level is going to be…let’s blame the whole thing on my years of teaching high-impact aerobics and staying fit. The years of taking care of my body were clearly to blame. I get that people equate the overuse of a joint to arthritis. I understand that in general people don’t know what rheumatoid arthritis is, but it’s freakin annoying sometimes to have to explain it.

I did explain it tonight, mostly because I was annoyed. I corrected her by saying that my joints weren’t deteriorated as of yet and that the type of arthritis I assume she’s thinking of is osteoarthritis, and what I have is an autoimmune disease where my body is attacking itself. Maybe I went on for a few more minutes than I normally would, but damn, it felt good to let it out tonight. She caught me on a night that I was in terrible pain. Sometimes you just can’t hold back, and tonight was one of those nights.

 

 

Go Away Raynaud’s

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Yes, I understand that medically it’s mostly just an annoyance, but dammit, my hands are a translucent white. They are freezing cold, and they hurt so bad they sting. I have pins and needles that feel like someone is jabbing little pins into the tips of my fingers when I run them under warm water to try and bring them back to a normal color and temperature. It’s more than an annoyance, it hurts.

It’s April 17th, I have my electric blanket on, my heating pad on my lower back and I keep alternating placing my hands onto the heating pad for extra warmth. It’s frustrating.

Today was a really busy day, and I probably did too much, yet I’m still wide awake. I started the morning teaching my class, but it wasn’t my best one. I didn’t have my best energy level, and my body started off pretty stiff and sore to begin with, so it was difficult to get going. I brought the kids to a trampoline park for an hours after my class, but this time I didn’t play along because none of my friends were jumping. I have to admit being a tiny bit disappointed, but it’s probably for the best because I’m not feeling that well.

We came home and I needed to catch a quick nap, which was all of thirty minutes, but I could hardly keep my eyes open. The fatigue has been pretty bad, and I also upped my Topamax to 100mg, and I remember that the fog and sleepiness from that usually takes a few days to get used to. The good news is that I haven’t been as hungry, which is kind of nice. I was down 4 pounds, but let’s be honest…I’m down for pounds from my highest weight ever so that’s hardly a celebration quite yet. I have just noticed overall, I’m not hungry between meals like I was before, so I’m not doing as much snacking….BONUS!

The highlight of my day was my daughter second voice lesson. Yes…I am that mom that cries at everything. I cried today as she sang Do You Want to Build a Snowman from Frozen. It’s not like I haven’t heard her sing it a million times around the house, but with some coaching on hold the notes and breathing, I couldn’t believe how she sounded. Just hearing my baby sing was so awesome.

I already know I’m not going to be able to sit through every lesson because I’m going to be that mom who cries, but if that’s the worst she can say about me at the moment, that’s not so bad.

Tonight I also met with our town’s Board of Finance Chairman. It was different than I expected. While I didn’t agree with everything he had to say, I rather liked him. I have learned that it’s always best to get your information straight from the source rather than from other people in the town. While I’m antisocial, I have sat down with the First Selectman, and had conversations with the superintendent, and the Chairman and other members of the Board of Education. Instead of running with the angry crowd, I’m getting my own information.

Do I agree with the angry crowd on some things, yes! Do I agree with the Board of Finance on other things, yes. Does this make me confuse…it sure as hell does. I am a middle of the road kind of voter. I am socially liberal, but when it comes to money I go back and forth depending on the issue. There are a lot of government programs that I think do amazing things. BUT…there are also some government funded programs that are a waste of money. There are many senators and congress people who don’t earn their salaries.

Anyway, I feel pretty good that I at least have listened to all the sides. I’m not sure who to believe on some things, as they are both citing very different facts. I’m sure the truth is in the middle, but I do feel that the man I met with this evening gave me a lot more to think about than I have heard in the past. I’m just trying to stay involved. I am one of those people that never really got involved in this stuff, and I’m trying educate myself.

Have a good night everyone!

Sorry to Disappoint

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For those of you waiting on the edge of your seats to hear about my reading with the medium, you’re going to have to wait another week. My migraine is back, thankfully not nearly as bad as the other night, but I feel crappy enough that I asked her if we could do it next week. Unbelievably, I woke up to about an inch of snow on the ground today. I swear, it was almost 80 degrees like three days ago. This is insane. Not only is it insane, it’s also hell on my rheumatoid arthritis and my fibromyalgia.

My joints were very stiff today with the cold. I had plans with my aunt and just being out in the freezing cold with the wind whipping around, needs a damn jacket again, and wishing I remembered to wear gloves…it was hell! It’s April! Enough of the cold.

My friend Christina posted on the Autoimmune Mama Facebook Group this evening that she felt she was always coming up short in one area or another in her life, whether it be her family, her clients, her business, her health, etc. It really made me think. I can so relate to how she feels, and I think most of us with autoimmune diseases can. It’s a juggling act between feeling well enough to take care of the things you need to do, and doing the things you want to do, combined with putting out the fires that come up on a daily basis. It’s hard! Heck, it’s hard just being a mom, let alone being a mom with an autoimmune disease (or in my case, more than one).

As I mentioned, my kids are on spring break. I’m reminded myself constantly that I love them…and that I went through hell to have them because I wanted them so badly. I need to remind myself so much because they are sending me over the edge this week. My day started out with my son crying that he was starving (again) and then whining about being bored. At one point today my girls were arguing and I told them to knock it off. My seven-year-old told me they weren’t fighting, it was the Littlest Pet Shops that were fighting. I actually told them that if the Littlest Pet Shops continued fighting I was going to separate them. Chalk that one up to things you never thought you ever say!

My point is it’s hard with them home. I’m trying to work. I’m trying to have fun with them, and I’m trying to not feel like crap…but the problem is that I do. My hands are back to feeling numb. I had the sharp pins and needles for over and hour this morning, followed by numbness. Now they are just freezing and white from the Raynaud’s. My hips and legs are sore and stiff. Is it the worst I’ve been? No. But I don’t feel good, that’s for sure.

What is making me happy at the moment is my job working for a nonprofit agency that helps children with special needs. I’ve been helping with an online auction and even doing a little fundraising (by email only because I’m anti-social and unfriendly), and I’m having a blast. Every time someone bids on something I’m thinking in terms of another family that I know we can help. Working there I see exactly how the funds are used. It’s not an operation that brings in a whole lot. Let me state the obvious…I’m not going to get rich working there, but I’m so happy doing what I do. I work with really awesome people, who are taking the time to teach me so much, and it just feels good when you help a parent in need, or you do something that you know is going to positively impact a child.

I try and focus on the good in my life when I’m having my low points. Yes, I’m feeling like hell, but I’m also lucky to have a job where I can work from home, in my pajamas most of the time. So all in all…it was an okay day. I’m hoping my kids are a tiny bit less annoying tomorrow. Also on my to-do list tomorrow is meeting with the head of the town’s Board of Finance…by myself. Did I mention I don’t really like people? I also don’t feel he and I have much in common, but I’m going to do my part to make sure he understands special education, but I don’t think he gets how expensive it is, and that it’s something that is state mandated. So, I’ll be stepping out of my comfort zone, perhaps with a half a xanax on hand, and going to have a cup of coffee with the BOF Chair. Oh the joy of it all. I’m sure I’ll have fun stories from that tomorrow.

Have a great night everyone!

People Annoy Me

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Last night I went to sleep really early. I actually was exhausted and I think I fell asleep before 10PM, which is unheard of, for someone with insomnia and chronic pain, especially at night. I’m not sure of the reason, but I didn’t question it, I turned off the television and computer and went to sleep…only to wake up a few hours later. So I sat there wide awake for a few minutes, then said screw it and turned on the computer.

My cousin (the one who played Dr. Google and basically told me my father was lying to me and his health situation was far more grave than he was telling me) sent me an instant message on Facebook saying something like, “If something happens to me, can I count on you to take care on my son?”

Now, let me explain a few things. My first cousin (her uncle) committed suicide the day before my third child was born. We are not a tight-knit family on my dad’s side. It’s not that we don’t get along, we just didn’t see each other all that much, other than on Christmas Eve and the occasional celebration. My cousin’s death was a huge shock to everyone, and my aunt and uncle were left with many unanswered questions. Suicide is a very selfish thing to do because it leaves the family behind with so much pain. That being said, I can only imagine the pain he was in to make that decision. I can’t judge him for it because I don’t know what brought him to that decision. I only feel sad that he didn’t feel he could turn to anyone for help.

Now back to my Dr. Google cousin. For the past few years we’ve connected through Facebook. She’s a nice person, but we’re different people. She has a flair for drama…okay, that might be a family trait, but I never know what kind of mood she’s going to be in so I tread lightly. In the past few months I’ve asked her a few times if she’s upset with me, and she always says no. To me, she just seems pissed off. I talked to her online from about 1AM to 2:30AM and I won’t air her dirty laundry, but she’s doing some things that aren’t the best decisions, and she needs to stop and think. She would never hurt herself because she loves her son too much, even she admitted that. She said she was just feeling really low and I think it was her cry for attention. I get that, and I tried to help, but my question of the day is, how far do you go to help?

If I person needs help like this a lot…like several times a month and really isn’t doing anything to help herself, do you keep helping? Or, are you becoming part of the problem because you’re allowing her to act that way and helping her through it each time? I’m really asking that. I would like someone’s opinion because I just don’t know the answer.

Anyway, aside from that, my freakin migraine is back. I really think that allergies are playing into it as I was also sneezing all day as well. It was downright gorgeous out, and though I felt like crap, the fat dog and I went for a short walk to enjoy the sunshine. It was 78 degrees here, and I’m not quite ready for shorts…or any clothes that don’t hide my weight, but I enjoyed the warmth.

My shins were really sore from yesterday’s walk because the girls and I took a really long walk and the way back to the house was all uphill. I didn’t realize my shins even hurt until we started walking uphill today. Honestly, though it felt good to move. Even with the warm weather I had a rough start to the day. My ring finger and pinky on my left hand were “stuck” for a good 45 minutes. This is becoming more frequent and it really hurts. It’s not just that I’m waking up with stiff, swollen fingers, my fingers are literally stuck in a semi-bent position.

Does anyone else have this? Is this what they call trigger finger? Or is that something that doesn’t work itself out on it’s own? Isn’t this stuff so much fun! I feel like just when I start to understand my autoimmune symptoms, I get a curve ball and things change. That might be the most frustrating part of having an autoimmune disease, or in my case more than one. There isn’t one set of symptoms. There isn’t one area of pain. The type of pain changes. Sometimes there’s numbness along with the pain. Sometimes there’s pins and needles that hurt so bad I want to cry. Sometimes my hands swell and I can’t even hold a cup. Some days, like today, two fingers are stuck and rendered useless for a period of time. Every day is different and you just don’t know what to expect.

To me, that’s the hardest part. I can’t plan for tomorrow, because I don’t know whether I’m going to able to wake up and go for a jog, or not be able to get out of bed until 11AM. And I’d like to say it sucks!

All in the Day of a Mom

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Another day of waking up nauseous, but it faded pretty quick this time. I was able to teach a killer class that involved walking lunges, wall sits, abs with weights, dead lifts, and crazy planks with weights. Needless to say, I wasn’t in too much pain this morning, and I was able to do a lot more than usual. It was one of the first mornings in a while that I was able to grasp my hands around 8lb weights without feeling like my hands were going to drop them at any moment.

Needless to say, I had a lot of fun with my this morning, and that set the tone for my day. It was a busy day and I didn’t have a lot of time to relax, so it was lucky that I felt pretty good. I had to pick my son up early for a doctor’s appointment, only to find out that he fell at recess and hurt his arm. Not sure if I’ve mentioned this before but of all of my children, my son is the one I refer to (behind his back) as Sophia Loren. Any injury leads to his Oscar reel performance of pain and suffering, so he gets into the car with his sweatshirt tied around his arm like a sling.

He explained what happened an I did notice a bit of swelling, so I got irritated that I had to hear it from him and not the nurse. I went into Mamabear mode and called the school nurse who said she didn’t notice any swelling, which is why she didn’t call me, but she did give him Advil for the pain. We were on our way to his monthly therapy appointment for his ADD meds and one would have thought his arm might fall off from pain.

He wanted to go to the doctor, but being the wonderful mom that I am, I explained that I had to take an online webinar from 3-4:30 today that I could not get out of. I told him we’d go home and ice it, and if it still bothered him at 4:30 we’d go get an xray. By the time 4:30 rolled around he wanted a cast, but I reminded him that he had baseball tryouts on Saturday and that it was his left arm (he’s a lefty). He got quiet, and thought for a while.

“What if they just give me a sling?”

“Then you can’t tryout for travel baseball, and we should probably cancel your sleepover tomorrow night since you’re in so much pain.”

…silence…

A short while later, shockingly, he felt a lot better! He thinks it was the Advil, I’m thinking it was the threat of losing the sleepover. Now I’m going to feel like the worst mom ever if his arm is broken, but I really think he’s fine.

The only thing I missed out on today was my walk. Although I taught I good class this morning, I didn’t get to any cardio exercise today. I’ll try and do something more tomorrow. What I’m finding difficult is not have a snack at night. I’m eating reasonable, small portions during the day, but if I eat at 5:30-6pm I’m hungry at 8:30-9pm. Tonight I had a rice cake with peanut butter…then I had a small bowl of cereal. Now I’m stuffed.

I could have done without the damn cereal. Tomorrow’s goal is not to have anything but one rice cake with peanut butter after dinner. I am also trying to wait until I’m really hungry to eat. I think I eat because I’m supposed to eat, not because I’m really hungry. I’m working on that too.

Now that it’s the end of the day, I’m pretty sore. My knees are more than pretty sore, which might be the RA and it might be the lunges (or a combination). The rest of me is just very stiff. After I’ve been sitting a while, it’s so difficult to get up and walk. I’m hunched over and holding onto a walk as I go down the hall. Let’s be honest — that just plain sucks!

Don’t forget to join our Facebook Autoimmune Mama Group for anyone suffering from an autoimmune disease. We’re off to a nice start, so please feel free to share the page with anyone you know that has rheumatoid arthritis, fibromyalgia, lupus, MS, MCTD, Raynaud’s Psoriasis, or any other autoimmune disease.

Also, don’t forget to email or send comments on the “best” bad comments you’ve received regarding your autoimmune disease. I’m compiling a list for an article and I know we’ve all heard some doozies at one time or another, whether it be the well-meaning advice, or someone who can relate because they have arthritis in their pinky toe 🙂 I want to hear your story! You can email me at autoimmunemama@gmail.com or comment on this article.

 

Where Is the Warm Weather?

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I’m not going to lie, today wasn’t my best. I woke up with a very upset stomach…pretty sure it was from the Topamax. If I remember correctly, I had an upset stomach for a few days when I started it the first time. Because of it, I missed out going to an World Autism Day event at out state capitol for work. It wasn’t a huge deal that I missed it, but I really wanted to go. Autism is something that I care deeply about. With many of my friends having children on the autism spectrum, and my work as a tutor to a person who is lower functioning autistic, it’s something that I am passionate about. I like to support this cause any chance I get.

There was I time when I felt that my son was on the spectrum, as he was a late talker and he didn’t point (one of the major milestones around the one year mark). I was a mad researcher and read everything I could get my hands on. As it turned out, he was developmentally delayed and was recently diagnosed with dyslexia, which explains a lot of his early childhood issues, but I have always cared very deeply about the issues with autism.

Instead of going to support the cause, I slept until about 11:30 and didn’t get much accomplished until after 2pm. I did however, get a walk in after dinner, and did some abs and some burpees. Whoever invented burpees should be tortured. Those are just plain awful. My joints are pretty stiff today so I couldn’t do as much as I did yesterday, but I was pleased to get in a walk and it was nice to be outside.

The other good news is my dog also has a weight problem so we’ll be working on this together. She looks like a fat sausage. She waits for the cats to finish eating and then clears their bowls every morning and night. I suppose it helps to have someone to diet with.

The other symptom I have from the Topamax is that I’m pretty tired. I remember that one lasting about a month. I’m trying to enjoy the fact that I feel tired in the evening and not just during the day. I’m wondering if I’ll actually fall asleep without the help of Ambien tonight.

I’m achy and exhausted, and I really hope tomorrow is better. Despite it being warmer, my hands haven’t quite noticed the temperature yet. They are still experiencing Raynaud’s and they are freezing like 85% of the time. My fingers are usually still puffy as well. I don’t remember it being that bad last year. I’m wondering if Raynaud’s is something that gets worse over time. Anyone have any insight?

Okay, well it’s a short blog tonight as I’m feeling exhausted and achy. I’m ready for my heating pads and grasp my hands around a hot cup of tea to soak up the warmth. I’m sure warm weather will be here soon right?

 

 

 

Making a List of Dumb Autoimmune Questions

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I’m making a list and I need your help. What’s the dumbest thing someone has asked you or told you regarding you autoimmune disease? Please share it with me for my list by emailing it to autoimmunemama@gmail.com or by commenting on this blog post.

I hope to put together a list so we can laugh at the humor of it all. Either well-meaning comments or negative thoughts…I want to hear them all.

Also, don’t forget to join the Autoimmune Mama Facebook Group to connect with others suffering from autoimmune diseases.

 

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